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| Sasha Spivak 1 year 10 months (born 11 July 2005) Anaplastic ependimom (3-rd grade) - brain tumor. |
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"Sasha was our unique and long-awaited son. Now he’s one year and four months. It was the cheerful child. There was a spring and we drew only the bright future. But at the end of April 2006 our kid’s health began to be worsened, he began languid, sad, refused food, vomiting has appeared. At medical inspection the terrible diagnosis was revealed - a tumor of a brain. It seemed, that life has stopped, that it is simply terrible dream. But the most terrible expected ahead. On April, 21 he was put in the Institute of Neurosurgery Romodanov for realization of operation on removal of a tumor, doctors have put all over again the shunt for outflow of a liquid from a head, but after the treatment the child became absolutely bad: eyes rolled upwards, a swallow reflex was gone, the mouth was constantly open, the child has left in itself, during dream eyes were not closed. Because of dehydration, he became similar to a small dried up old man. The body began to leave liquid excrement of black color, and a mouth was vomiting bloody slices. The basic operation on removal of a tumor was cancelled. The attending physician has told, that he will die on an operational table. To us the further steps have being explained - couple of days he will remain with us, then in reanimations the kid will enter into medicamentous dream and all everything will be finished. We could not believe and prayed to God. The kid has survived and on May 25, as the boy was not subject to treatment, we were sent home. I have gone to Moscow’s Institute of Burdenko with the x-rays and analyses, but there was a categorical refusal about realization of operation. The fortune has sent us the woman who has offered a financial help. We have got to Germany, to Frankfurt am Main. German doctors have made impossible - unique operation (operation lasted for 7,5 hours on 4 July 2006), but because of bad localization of a tumor and growing into a trunk of a brain, surgeons have removed only 80 %. The conclusion of histology - anaplastic ependimom (3-rd grade). In two weeks after operation the kid has opened eyes, which was like a miracle. Gradually he started to move hands, then on the sly to eat without a probe. We have come back home for passage of chemotherapy treatment. Unfortunately, after the first block of chemistry a sharp deterioration of state of health was concluded, and it became clear, that he might not transfer the following block, and it is possible to do an irradiation only after three years. And still our boy the every prospect has appeared to live. Now he is absolutely adequate child, laughs, plays with toys. One of these days he has told the first word "mum". Unfortunately, illness has not disappears and it is necessary to struggle. But the big financial means are necessary for passage of such therapy, supporting and regenerative therapy which are very expensive. The salary of my husband hardly suffice on the most necessary. All help which was rendered, is already spent on treatment. We shall be very grateful, if you render us a
financial support in realization of the further treatment. The kid
has passed very difficult and long way to a present condition. We
hope, that the most terrible is behind, but without your help it
is almost unreal. Spivak Irina - mum The phone of parents: 8 503-84-52 or 8 955-45-94 Read also here: http://www.donor.org.ua/index.php?module=help&act=show&c=1&id=196 http://www.donor.org.ua/index.php?module=arnews&act=show&c=1&id=1207
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